Thank you so much for all of this! I think being tested to see if I have developed allergies is a good idea. I live in rural Wales so there aren't any dermatologists around, but I could try asking my GP - hopefully I'll luck out and they'll listen!
Hello there - I had a question which I think(?) you might be able to help with. Or at least point me in the direction of more information.
I have a few chronic illnesses and disabilities and as such there's many gremlins I deal with. One thing that crops up a lot are comorbidities between my conditions.
I'm trying to be more vigilant with regards to my health - as a child there were many, many missed opportunities to get my symptoms seen to by a doctor (all squandered due to my parents nor believing me about my symptoms).
Anyway, I wanted to ask about MCAS and if you know it's possible to have it but not realise it?
I've had a few incidents like this, but mostly forgot them or ignored them. But yesterday I ate some basil from my windowsill plant and I had what can only be described as an allergic reaction. I'm not allergic to any foods (as far as I know) but I've eaten from this exact plant before and been fine. I have mint growing next to it which I also ate and it caused the same reaction. Again, I've eaten from this exact plant before. It was like my mouth was burning or stinging and the leaves felt, spicy? In my mouth. I'm not sure how to describe it but I hope you know what I mean. Today I ate from the exact same plants and had no reaction whatsoever.
I've definitely had similar things happen before- but events like yesterday are few and far between. But utterly confounding when they do happen. I have urticaria (diagnosed since age 18) which I suspect is relevant, somehow.
I'm starting to wonder if a lot of my symptoms I've written off have actually been MCAS. But I'm not sure. Do you have any advice around talking to a doctor about this or if I have a leg to stand on so to speak?
Sending my best wishes!
Hey friend, sorry to hear you've been dealing with some neglect.
And considering MCAS was only really recognized as a condition in the last 15 years, it's absolutely possible to have it and not know until symptoms get worse. I was experiencing anaphylactoid reactions my whole childhood, but because I tested negative on IgE tests (I still do), it was dismissed as anxiety right up until I hit my 30s and I experienced my first episode of full-blown idiopathic anaphylaxis.
(Note: anaphylaxis is not a requirement for diagnosis, and not everyone experiences it.)
You should discuss your inconsistent allergies with your doctor or allergist. I would also advise pursuing allergen testing, as new allergens can develop at any time, even if you don't have mast cell instability.
If you suspect some form of mast cell instability may be the root cause of your issues, I'd suggest checking out The Mast Cell Disease Society. (Their website is in the process of being updated, still. But they have good resources there.)
Their signs and symptoms (and triggers) page has recently been updated and is fairly concise:
If any of that rings a bell, it might be worth bringing up with your allergist, but fair warning, not everyone is receptive to the idea of mast cell disorders outside of mastocytosis. (And even then some doctors gaslight their patients to hell and back.)
If you do find yourself in this situation, try joining a couple of support groups to see if there are any MCAS aware doctors in your area, or alternatively, try the TMS physician finder tool:
Sorry if it seems like I'm just throwing a lot of links at you, but they are very useful links and I'm not at my best right now to explain things.
I hope this is helpful and if I missed something, please let me know.
I wish you luck in remedying your chronic health issues <3
Following on from this post I made yesterday, in which I listed some possible gender neutral Welsh terms for family brainstormed in the discord, I'm going to make a series of polls to find out which terms people prefer for each concept. In each poll I'll have two options and example sentences using each term (you are welcome to create your own as well). Your feedback is very much appreciated too! Reblog with tags or send an ask- either is fine!
And of course, please reblog for a larger sample size. Diolch!
Sibling(s):
Chwaed(ion) f. - “Mae fy chwaed yn byw yng Ngheredigion” (My sibling lives in Ceredigion)
[‘chwaer’ (sister) + ‘brawd’ (brother). Rhymes with ‘chwaed’ (blood), reminiscent of family ties]
Chwaerydd m. - “Mae ei chwaerydd yn hoffi hufen iâ” (His sibling likes ice cream)
['chwaer' + '-ydd' (masculine suffix) ]
tumblr was designed in a lab to be a personal purgatory for ppl with moral ocd i think
This is a post I've been sitting on for a while and it's time I finally write it to let you all know how I am, where I'm at and the progress of Prosiect Llyfr Enfys.
So, as I alluded to in previous posts, I had a health scare at the end of May which landed me in the hospital. I've spent June recovering from that and dealing with a few life changes as well (which I will talk about later).
Unfortunately, me and my partner had to deal with an unexpected bill of £200 this month which had to come directly out of my savings and is a huge chunk of it.
I've been doing research in preparation for hopefully doing a Masters at Aberystwyth in September on the topic of LGBTQ+ Welsh terminology before the 20th Century. My undergraduate dissertation was on the topic of 20th-21st Century LGBTQ+ Welsh terminology (which is currently unmarked due to the marking boycott). Hopefully after graduation I can share it with you. But my research into older terminology means needing to travel to different archives and libraries in Wales, which at the minute, I just can't afford. The closest place would be Bangor, but I have no money to spare at the minute and Prosiect Llyfr Enfys is not funded by any scheme or grant- it's currently all funded by myself.
For the first time in my life, I've been considering using a food bank. We're not quite at that stage yet, but it's precarious. It's another unexpected bill away from a critical situation.
Currently, my monthly expenses for anything related to the dictionary totals around £40 (subscriptions to archives, libraries, genealogy research tools) which have been instrumental in my work. For example, I couldn't have written my articles for Hanes LHDT+ Cymru without access to ancestry sites or online newspaper archives. This does not include other expenses such as bus tickets to get to the National Library of Wales when I need to, or costs of purchasing dictionaries in order to source them in my work.
All of this is to say that i need your help:
I have a patreon which I will be posting in next in July- if you enjoy Prosiect Llyfr Enfys and want to help keep it going, please consider subscribing today by clicking the link above or in my bio. The lowest tier is affordable and if you have the cash to spare, will enable me to keep on working on the project. If you want to make a one-time donation, I'm considering enabling tips on tumblr for those who would prefer that.
If enough people are able to subscribe to keep the project going, I can start to make some concrete plans for a trip to Bangor and share my journey with you all and involve you in the trip. If I'm unable to raise enough funds, I will have to make the decision to pause the project until after my Master's. I do not currently have a publisher, which is also a big factor in that decision, if I need to make it.
All your support is greatly appreciated- if you cannot donate, please share this post.
As ever, huge huge diolch yn fawr to everyone who has supported the project so far- with your help, we can get this dictionary published to help benefit the whole Welsh LGBTQ+ community and beyond.
Y llyfr heddiw yw 'A Little Gay History' gan R.B. Parkinson, a gyhoeddwyd yn 2013.
Mae'r llyfr hwn yn gasgliad o enghreifftiau o hanes LHDT+. O'r Oes Efydd yn Ewrop i Edo Japan - mae'r llyfr hwn yn dangos cariad hoyw a rhywedd amrywiol yn hanes y byd.
Prynais y llyfr hwn o'r hyfryd Gayberystwyth Books - siop lyfrau hoyw a lleol yn Aberystwyth!
Ydych chi wedi darllen y llyfr hwn?
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Today's book is 'A Little Gay History' by R.B. Parkinson, published in 2013.
This book is a collection of examples of LGBT+ history. From Bronze Age Europe to Edo Japan - this book shows gay and gender diverse love within world history.
I bought this book from the lovely Gayberystwyth Books - a local gay bookshop in Aberystwyth!
Have you read this book?
Cymru Queers for Palestine disrupting and leading the Cardiff Pride Parade, Saturday 22nd June by Hannah Tottle
So I've felt very overwhelmed these past few months - mainly due to being preoccupied with keeping a roof over my head, putting food on the table and bills paid. I'm still very much preoccupied with all of these things. But slowly, good things are happening amongst the bad and I want to focus on those things.
Firstly, in early February three of my queer art pieces (pictured) were unveiled along with the works of 9 other artists in the Tir Cwiar exhibition in Elysium Gallery in Swansea, in collaboration with On Your Face Collective. It's something I'm immensely proud of and happy about - so many people came to the opening of the exhibition on the 7th and I met so many wonderful people on the night.
Secondly, I have been buoyed by connecting with other queer people in Ceredigion - especially at events like Friday's Aberration Cymru event and I've been buoyed by the support of my friends here in Aberystwyth. You know who you are reading this!
I've been through a lot - so much. So much I can't even begin to describe or explain. I've had losses, I've jumped through hoop after hoop. But I keep going. There's been setbacks aplenty - but I have no intention of putting down pen or paintbrush any time soon.
So, with that in mind - since November I officially became self-employed and declared myself as such to HMRC. Right now, Llyfr Enfys is my sole source of income. Which means, I'll be ramping up selling my prints, poetry and dissertation to help support myself as well as taking on freelance work where I am able.
I've been overwhelmed with the love and warmth of the response to my last post and can confirm as of today I have paid the last looming bill (for now). Thank you so, so much to everyone who has helped support me monetarily - I will be buying more stamps ASAP and then sending everything off to you all 💜
But from here on in - expect a lot more from Llyfr Enfys - solidarity forever and much love 💗
i wish i was a cishet guy so that i could start a podcast and go to the gym and allow that to fulfill me spiritually. but instead i have these visions
There are reports that the Government is planning to introduce guidance stating that schools in England must inform parents if a young person seeks to change their name or starts wearing different uniform. We believe this information should be kept confidential, unless the child chooses to share it.
hey if you're a UK resident can you sign this petition and if not please rb to spread the word
this is an official UK government petition that they have to respond to if it reaches 10,000 signatures
Luke's main (for @llyfrenfys) | The blog formerly known as llyfrau-enfys / lledr-neidr-lleidr | he/him fe/ei
88 posts