When A Chronically Ill Or Disabled Person Gets Their Lab Tests Back As “normal” Or All Clear, We

When a chronically ill or disabled person gets their lab tests back as “normal” or all clear, we aren’t sad because we WANT to be sick.

We’re sad because we *know* there’s something wrong with us, yet the scans still stay clear.

Before you kill the monster you gotta know its name.

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More Posts from Ibs-qveen and Others

8 months ago
How to Pay Hospital Bills When You’re Flat Broke • Bitches Get Riches
Bitches Get Riches
It’s a fucking travesty that the leading cause of bankruptcy in these United States is medical bills. Not credit card bills nor risky invest

How to Pay Hospital Bills When You’re Flat Broke

It’s a fucking travesty that the leading cause of bankruptcy in these United States is medical bills. Not credit card bills nor risky investments. Not even student loans, but hospital bills. Invoices racked up through freak accidents and diseases the patient certainly didn’t ask for and would probably prefer to live without.

To our readers in other, more civilized countries, you’re dismissed. This week we’re going to be dissecting a uniquely American problem: exorbitant medical bills and how to pay them.

The CEO of GoFundMe, an online crowd-funding platform, never dreamed that his company would become synonymous with “I’m broke and need $300,000 to pay for my child’s cancer treatment.” What he envisioned as a way for entrepreneurs and artists to raise money for their passion projects has become the last desperate hope of sick and injured Americans on the verge of total financial ruin.

It blows, dear readers. It fucking blows.

Keep reading.

If you liked this article, join our Patreon!


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1 year ago

how to get rid of nausea (or at least reduce it)

ok y'all so it's almost 1 in the morning and i can't sleep so i figured i might as well make use of my time. these tips are from what have personally worked well for me as a person who's been dealing with ibs and gerd since basically birth. of course these might not work for everyone, this is just what has helped me the most :)

first, make sure you've taken your meds!

sip on some cold water. preferably with ice.

get some cool air. whether that's through a window or just a fan.

drip some cold water onto the veins of your wrist. i know this sounds kinda weird, but my dad said it's a trick he learned in the military to help nausea. it's worked pretty well for me, personally. though the effect is temporary.

sip on some cola or another fizzy pop. carbonation helps you burp, and you honestly might just have some trapped gas. you'd be shocked how just one good, trapped burp makes you feel like you need to projectile vomit. drink in small, frequent amounts, not large gulps(for the love of god don't take large gulps. please). this is honestly one of the best tricks for nausea for me, it helps within minutes or sometimes a bit longer.

sniff some rubbing alcohol. again, kinda weird, but it works pretty well for some reason.

drink some pepto bismol. a life saver honestly.

take some tums. i highly recommend the peppermint flavored ones. tums are usually for acid reflux/gerd, but the peppermint really helps the nausea part for me. that's why i usually get these bc i'm killing two birds w/ one stone lol

sleep at a high elevation. this helps stomach contents from coming back up. there's been many times where i've had to sleep at a 90° angle. get out your pillows and stuffed animals to make one giant mountain if you have to (that's what i do at least).

sleep on your left side. if you really want to sleep on your side, sleeping on the left keeps the stomach contents down the best.

distract yourself. either watching your favorite show, playing a game, or, hell, even working. this might be a bit tricky if the nausea is overwhelming, though.

avoid strong smells. rubbing alcohol is the exception here, but strong smelling things (esp food) has always made my nausea much worse.

avoid spicy/punch-to-the-face type food. eat simple foods like toast, saltine crackers, or applesauce. my personal favorite is dried seaweed (salted)!

sit upright; try not to slouch. sitting upright helps you digest food properly and gets rid of any trapped gas as well.

don't move around a ton. of course, some simple stretching is beneficial, but i'm just suggesting you don't go run for a few miles when you're feeling like shit <3


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8 months ago

what are your thoughts on ibs diagnosis

78% of people reporting to ERs due to IBS have chronic gastritis.

population studies on microscopic colitis are rare, but have found that rates are much much higher on a population level than previously assumed

the symptoms labeled as ibs (diarrhea and constipation with no obvious flags for inflammatory bowel disease) are often treated as an issue of simple dietary intolerances, or as a psychosomatic condition, and people with ibs are told to follow various diets, or to "reduce stress."

these diets tend to be high fiber, which could literally kill someone whose actual issue is gastroparesis, or could severely aggravate microscopic colitis. i know that when i was trying to eat high fiber, my symptoms were completely unmanageable, and switching to a low fiber diet is the only thing that's helped at all. the food intolerance stuff can be really helpful for people who do have rare food intolerances, but for people who actually/also have autoimmune gastritis, it wastes time that could be spent monitoring for gastric atrophy, metaplasias, and precancerous lesions.

the worst part of this is that things like microscopic colitis and h-pylori related chronic gastritis are treatable, either with steroid medication or antibiotics to kill the h-pylori. but if you're dismissed with "dietary changes" or "reduce stress," then you're not getting treated for conditions that can cause really serious tissue damage and increase your cancer risk.

basically ibs is a "fuck you get out of my office" diagnosis


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ibs
1 year ago
ibs-qveen - chronic illness

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tip
1 year ago
April Is IBS Awareness Month. If You Have Irritable Bowel Syndrome (IBS), You Are Not Alone – IBS Is

April is IBS Awareness Month. If you have irritable bowel syndrome (IBS), you are not alone – IBS is common with prevalence estimated at 10% to 15%. Yet many people remain undiagnosed and unaware that their symptoms indicate a medically recognized disorder.


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ibs
5 months ago
ibs-qveen - chronic illness

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psa
1 year ago

hey guys psa regarding hospital bills

don’t just pay it. do not automatically pay the hospital bill when you receive it. call your health insurance provider and POLITELY say, “excuse me, i just received a bill for $1200 for my hospital visit/ER visit/etc., is that the correct amount i’m supposed to pay?” because hospitals bill you before your health insurance and they will take your money no matter how the amount due may change based on your health insurance looking at it. 90% of the time, if your health insurance is in any way involved in the payment of that bill, you do not have to pay as much as the hospital is billing you for. call your health insurance provider first, and POLITELY request clarification, always remember that the person you are talking to is human and this is just their job, and then you will very likely find out you actually only owe $500.

don’t shout at anyone about it, don’t get mad, just understand that this is The Way Things Are right now and call your health insurance provider before paying the bill your hospital just sent you. there’s a chance the hospital bill might be correct, true, but call your health insurance provider.


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tip
1 year ago
Another Free Notion Template! This One Is A Digital Medical Binder To Keep All Your Medical Information

Another free Notion template! This one is a digital medical binder to keep all your medical information in one place, to make the medical system easier to deal with. A minimalist and mobile friendly version coming soon!

Aesthetic Digital Medical Binder Notion Template
Gumroad
This Notion template is meant to help organize all your medical information to help make navigating the medical system easier! It contains t

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10 months ago

It's too hot to exist. 🥵

Stay safe, SpoonieStrong fam. 💙🥄


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psa
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ibs-qveen - chronic illness
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